Managing an Ultra-Rare Disease with Eleven

Managing an Ultra-Rare Disease with Eleven

Managing an Ultra-Rare Disease with Sanius Hello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS). OHS is an X-linked recessive mitochondrial and connective tissue disorder that was previously considered a variant of Ehlers-Danlos...
Career | Healthcare Business and Project Analyst

Career | Healthcare Business and Project Analyst

Career | Healthcare Business and Project Analyst If you are reading this, we firstly want to say it’s a pleasure to meet you and we are very thankful for your interest in this role. We are extremely passionate about rare diseases and the ability to make the world a...