by Sanius | Mar 24, 2022 | Industry Insights
Managing an Ultra-Rare Disease with Sanius Hello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS). OHS is an X-linked recessive mitochondrial and connective tissue disorder that was previously considered a variant of Ehlers-Danlos...
by Sanius | Mar 16, 2022 | Careers
Career | Healthcare Business and Project Analyst If you are reading this, we firstly want to say it’s a pleasure to meet you and we are very thankful for your interest in this role. We are extremely passionate about rare diseases and the ability to make the world a...
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