Sanius Health celebrates Rare Disease Day 2023 and its commitment to improving the lives of patients living with rare diseases.
Rare Disease Day, which takes place on the last day of February each year, is an international awareness-raising campaign for rare diseases. The day seeks to raise awareness of rare diseases, patients’ challenges, and the need for equitable access to diagnosis, treatment, and care. Rare diseases are defined as conditions that affect fewer than 1 in 2,000 people, and there are currently more than 7,000 known rare diseases affecting an estimated 400 million people worldwide. These diseases can be difficult to diagnose and treat due to their rarity and the limited understanding of their underlying causes.
On Rare Disease Day 2023, Sanius Health reaffirms its dedication to improving patients’ lives with rare diseases. We recognise the importance of early diagnosis, personalised treatment plans, and access to innovative therapies. By working together with patients, healthcare providers, and the wider community, we can make a difference in the lives of those affected by rare diseases. Sanius Health recognises patients’ unique challenges with rare diseases and is committed to developing innovative solutions to improve their care and quality of life. As part of this commitment, Sanius Health is investing in the research and development of new treatments and collaborating with patient organisations and healthcare providers to raise awareness and improve access to care. Sanius Health currently supports patients living with sickle cell disease and is rolling out its patient ecosystem to people living with Amyloidosis, Fabry Disease and CML.
“Rare Disease Day is an opportunity to raise awareness about the significant impact that rare diseases have on patients and their families,” said Orlando Agrippa, CEO of Sanius Health. “At Sanius Health, we are dedicated to improving the lives of patients with rare diseases by developing innovative, personalised ecosystems to help them manage and understand their condition.”
Sanius Health’s mission is to provide patients access to personalised, data-driven care that can improve their health outcomes. The company’s digital health ecosystem enables patients to track their symptoms, monitor their treatment progress, and understand what works and doesn’t for their condition.
If you would like Sanius Health to expand into a rare or chronic condition that you think would benefit from the ecosystem, please reach the team at info@saniushealth.com
