by purvi | Dec 1, 2023 | news and press
< Back to Sanius content Generating Real-World Insights for Rare Disease Research and Clinical Trial Implications | A Case Study in AL Amyloidosis “Ultra-rare” and “incurable” – keywords that appear all too often when exploring the rare disease landscape. For...
by purvi | Dec 1, 2023 | news and press
< Back to Sanius content This is What Sickle Cell Looks Like: Courage, Self-Belief and Survival Beyond All Odds. For decades, Lena René lived with uncertainty about her condition. After years of being gaslit and ignored by her native health system, she speaks up on...
by purvi | Dec 1, 2023 | news and press
< Back to Sanius content This is What Sickle Cell Looks Like: Compassion for Everyone – Including Yourself. Sanah Shaikh, SCD patient and aspiring life coach, speaks to Sanius Health about the importance of finding strength in self-compassion. If you ask Sanah...
by purvi | Dec 1, 2023 | news and press
< Back to Sanius content Sanius Health reaches 28M People with its Awareness Billboard Campaign. After driving the biggest Sickle Cell Disease (SCD) Awareness Campaign in the history of the condition, Sanius Health continues to work with community advocates to...
by purvi | Dec 1, 2023 | news and press
< Back to Sanius content What does the data tell us about health inequality for Sickle Cell Disease in the UK? / The clinical and patient perspective. There were over 150,000 avoidable patient deaths across the UK in 2020, a significant spike from previous years....
by purvi | Dec 1, 2023 | news and press
< Back to Sanius content Capturing the Patient Experience During a Vaso-occlusive Pain Crisis | What Can We Learn from First-hand Insights? If you ask a patient with sickle cell disease (SCD) to describe exactly what a pain crisis feels like, among the common...