by Sanius | Jun 28, 2023 | Careers, scdmonth
Career | Senior Researcher & Programme Lead If you are reading this, we firstly want to say it’s a pleasure to meet you and we are very thankful for your interest in this role. We are extremely passionate about rare diseases, and making the world a better place...
by Sanius | May 23, 2023 | Disease management, Industry Insights, scdmonth
Capturing the Patient Experience During a Vaso-occlusive Pain Crisis | What Can We Learn from First-hand Insights? If you ask a patient with sickle cell disease (SCD) to describe exactly what a pain crisis feels like, among the common keywords is often a simple...
by Sanius | May 2, 2023 | Disease management, Industry Insights, scdmonth
Healthcare Industry Spotlight: Orlando Agrippa, CEO of Sanius Health “Revolutionising Patient Care: A Patient-Centred Approach to Flow and Discharge” Sanius Health: On taking a patient-centred and clinically led approach to the issues around patient flow...
by Sanius | Apr 26, 2023 | Disease management, Industry Insights, scdmonth
Generating Real-World Insights for Rare Disease Research and Clinical Trial Implications | A Case Study in AL Amyloidosis “Ultra-rare” and “incurable” – keywords that appear all too often when exploring the rare disease landscape. For patients diagnosed with systemic...
by Sanius | Apr 25, 2023 | Disease management, Industry Insights, scdmonth
Improving Patient Outcomes, Access and Flow. Over 125,000 patients in England waited at Emergency Departments (ED) for over 12 hours in February 2023 alone, representing more than 10% of the NHS’ 1.2m attendances over the period. In light of last week’s post-bank...
by Sanius | Apr 12, 2023 | Disease management, Industry Insights, scdmonth
Career | Business Development Manager If you are reading this, we firstly want to say it’s a pleasure to meet you and we are very thankful for your interest in this role. We are extremely passionate about rare diseases and the ability to make the world a better place...
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