Thanks to Sanius’ users, we now have more information about the lives of those with Sickle Cell and Thalassemia than has ever existed.

To do this, we have created an ecosystem that allows you to keep an eye on your physical and emotional wellbeing from the comfort of your own home. Whereas insights have in the past been driven by snapshots of your health from occasional healthcare visits, Sanius monitors your biometrics through a smartwatch that tracks your vitals day-to-day.

This daily tracking provides information the likes of which the Sickle Cell Community have never seen.

Every experience is different, and that’s why we need your help. By adding your unique perspective to the discussion you’re helping healthcare providers and researchers better understand the real-world experience of people with SCD. We want to hear and share the story of everyone with SCD; we may have a few stories already, but we don’t have yours.

Sharing your experience with Sanius allows researchers to see the full picture of SCD and how it impacts the daily lives of patients. By being part of our programme you are helping power research into improving the lives of every single member of the Sickle Cell Community.

Understanding the differences in people’s healthcare needs is just as important as seeing the similarities. By gathering diverse data we’re able to showcase the need for varied and personalised healthcare support and help build a better care system for the future.