by purvi | Nov 27, 2023 | news and press
< Back to Sanius content Rising Living Costs: A Crisis for the Sickle Cell Community Having Sickle Cell Disease has always been expensive. Now, the cost of living crisis has added an extra challenge to the mix. As the cost of living crisis worsens,...
by purvi | Nov 27, 2023 | news and press
< Back to Sanius content Analytics and PROs: promoting healthy and safe pregnancy for SCD patients As Sickle Cell Disease (SCD) care improves, more and more people are reaching ages – and life stages – where they’re ready to grow their families. In fact, in the UK...
by purvi | Nov 27, 2023 | news and press
< Back to Sanius content The Power of Remote Monitoring Tracking Quality of Life and Live Physiological Measures for Better Patient, Disease, and Therapeutic Understanding In the fight to ensure each new innovation is backed by real-world evidence that demonstrates...
by purvi | Nov 27, 2023 | news and press
< Back to Sanius content Managing an Ultra-Rare Disease with Sanius Hello, I’m David Rose and I have an ultra-rare disease called Occipital Horn Syndrome (OHS). OHS is an X-linked recessive mitochondrial and connective tissue disorder that was previously considered...
by purvi | Nov 27, 2023 | news and press
< Back to Sanius content Mwape’s Story: Life with Symptomatic Sickle Cell Trait Mwape Miller is an author, artist, traveller, cook, and music lover. She is also someone with symptomatic Sickle Cell Trait (SCT). Typically, SCT does not result in symptoms but, in...
by purvi | Nov 27, 2023 | news and press
< Back to Sanius content How Patient Communities Drive Change A well-informed patient is a powerful thing. When patients are knowledgeable about their health and their conditions they’re able to take an active role in their care. This can be anything from providing...