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Unlocking Insights: Wearables & Data for Sickle Cell Crisis Prediction
Translating Real-World Wearables and Digital Self-Reporting Data to Novel Research Insights | Vaso-Occlusive Crisis Predictions and Treatment Pathway Insights in Sickle Cell Disease
News & Press
Sickle Cell Awareness Month | Sanius Health Celebrates Advances in SCD and Future Progress
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Waiting Times and Patient Experience Data AI SML Benchmarks
&...
Sanius Health: An Acute NHS Provider Patient Experience Trust League Table | Unpublished, AI-Captured Social Media Listening Care Experiences Data.
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Studies and resources
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COLD AGGLUTININ DISEASE
Areas of interest /
Real-world experience & unmet needs
Biomarkers /
EQ-5D, Symptoms, Patient-Reported Unmet Need
Published in /
British Journal of Haematology
A Real-World Patient Experiences and Quality of Life Insights Snapshot in Cold Agglutinin Disease (CAD)
British Society For Haematology (BSH) Annual Scientific Meeting (2024)
CHRONIC MYELOID LEUKAEMIA
Areas of interest /
Digital Healthcare Solution Implementation
Target /
Patient Satisfaction, Feedback
Published in /
Journal of Oncology Pharmacy Practice
Evaluation of a smartphone app (My CML) to support patients with Chronic Myeloid Leukaemia: the patient perspective
British Oncology Pharmacy Association (BOPA) Annual Meeting October 2024
SICKLE CELL DISEASE
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
Activity, Sleep, Quality of Life
Published in /
HemaSpere
Mapping the Prodromal Stage of Vaso-occlusive Crises: A Patient Experience and Wearable Biometrics-driven Approach
29th European Hematology Association Congress (2024)
SICKLE CELL DISEASE
Areas of interest /
Outcomes research & novel therapeutic impacts
Biomarkers /
PROs, Activity
Published in /
HemaSpere
Monitoring the Real World Impacts of Voxelotor Treatment on Blood Transfusion Requirements, Quality of Life, And Physiological wearable metrics in UK patients with sickle cell disease
29th European Hematology Association Congress (2024) – Publication Only
SICKLE CELL DISEASE
Areas of interest /
Approach to virtual monitoring & their impact
Biomarkers /
Wearables, PROs, Symptoms Scores
Published in /
TBC
A Virtual Hospital Approach in Sickle Cell Disease | Remote Biometric, Quality of Life, and Hospitalisations Monitoring
American Society of Haematology Exposition (2024) — Oral and Posters Presentation
SICKLE CELL DISEASE
Areas of interest /
Real-world patient experience
Biomarkers /
PROs, Activity, Sleep, Heart Rate
Published in /
TBC
Comparison of Sickle Cell Disease Patient Experiences in Developed and Developing Countries: Insights from UK and India Patient Cohorts
American Society of Haematology Exposition (2024) — Oral and Posters Presentation
MYELOPRO-LIFERATIVE NEOPLASMS
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
MPN-10 TSS, PROs, Activity, Sleep, Heart Rate
Published in /
TBC
Mympnvoice – a Novel Smartphone App for Monitoring Patient Reported Outcomes and Biometric Data in Patients with Myeloproliferative Neoplasms
American Society of Haematology Exposition (2024) — Oral and Posters Presentation
WALDENSTROM MACROGLO-
BULINEMIA
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
EQ-5D, Activity, Sleep, Heart Rate
Published in /
TBC
Feasibility of Advanced Remote Health Monitoring in Waldenstrom Macroglobulinemia: Integrating Wearable Technology and Digital Quality of Life Tracking
American Society of Haematology Exposition (2024) — Oral and Posters Presentation
SICKLE CELL DISEASE
Areas of interest /
AI-driven crisis prediction
Biomarkers /
Wearables, PROs, Pathology
Published in /
TBC
Enhanced Artificial Intelligence (AI)-Driven Prediction of Vaso-Occlusive Crises in Sickle Cell Disease: Precision through Advanced Machine-Learning Frameworks and Digital Remote
American Society of Haematology Exposition (2024) — Oral and Posters Presentation
CHRONIC LYMPHOCYTIC LEUKAEMIA
Areas of interest /
Real-world experiences & unmet needs
Target /
Social Media Keywords
Published in /
TBC
Chronic Lymphocytic Leukaemia Patient Experiences, Challenges: Insights from AI-Driven Social Media Listening Analysis
American Society of Haematology Exposition (2024) — Publication Only
WALDENSTROM MACROGLO-
BULINEMIA
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
EQ-5D-5L, Symptoms, Treatments, Wearables
Published in /
Journal of Clinical Oncology
New approaches to active monitoring: Patient-reported outcomes and wearables utilisation in Waldenstrom macroglobulinemia
American Society of Clinical Oncology Annual Meeting (2024)
WALDENSTROM MACROGLO-
BULINEMIA
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
PROs, Activity, Sleep, Heart Rate
Published in /
–
Harnessing Wearable Devices and Patient-Captured Outcomes for Subjective Health Monitoring in Waldenstrom Macroglobulinemia: A Longitudinal Remote Approach is Feasible.
The International Workshop on Waldenstrom’s Macroglobulinemia (IWWM12)
CHRONIC MYELOID LEUKAEMIA
Areas of interest /
Real-world experience & unmet needs
Target /
Treatment, Healthcare utilisation, VOCs, Hb level
Published in /
British Journal of Haematology
Patient experience, treatment adherence and unmet need in UK CML community
British Society For Haematology (BSH) Annual Scientific Meeting (2024)
SICKLE CELL DISEASE
Areas of interest /
Real-world awareness for Novel Therapeutic
Target /
Awareness, Knowledge, Interests, Challenges
Published in /
British Journal of Haematology
Real-World Patient Awareness Around Emerging Gene Therapies: Implications for Barriers to Access
British Society For Haematology (BSH) Annual Scientific Meeting (2024)
SICKLE CELL DISEASE
Areas of interest /
Real-world experiences & unmet needs
Biomarkers /
Prodromal Symptoms, VOCs
Published in /
TBC
Real-World Vaso-occlusive crisis patient experiences insights: Finding from a sickle cell disease US patient survey and UK workshop
19th Annual Sickle Cell & Thalassaemia Conference (2024)
SICKLE CELL DISEASE
Areas of interest /
Real-world experiences & treatment insights
Biomarkers /
Treatment, Healthcare utilisation, VOCs, Hb level
Published in /
TBC
Real-World Vaso-occlusive crisis, blood biomarker, transfusion, and treatment cohort Insights: finding from a sickle cell disease (SCD) patient survey in the United States
19th Annual Sickle Cell & Thalassaemia Conference (2024)
SICKLE CELL DISEASE
Areas of interest /
Patient Perspective on Novel Therapeutic
Target /
Awareness, Knowledge, Interests, Challenges
Published in /
TBC
Exploring patient perspectives on emerging gene therapy: findings from a sickle cell disease (SCD) patient survey in the united Kingdom
19th Annual Sickle Cell & Thalassaemia Conference (2024)
SICKLE CELL DISEASE
Areas of interest /
Longitudinal digital outcomes & biometrics tracking
Biomarkers /
Wearables, PROs, Patient Feedback
Published in /
Indian Journal of Hematology and Blood Transfusion
Empowering Sickle Cell Disease Management in Indian Tribal Communities: Evaluation of Digital Ecosystem for Enhanced Quality of Life and Healthcare Access
65th Annual Conference of Indian Society of Haematology and Blood Transfusion (Haematocon) (2024)
SICKLE CELL DISEASE
Areas of interest /
AI-driven crisis prediction
Biomarkers /
Sleep, Activity, Heart Rate, Pain, Fatigue, EQ-5D
Published in /
Blood Journal, American Society of Haematology
Predicting Vaso-Occlusive Crises in Sickle Cell Disease through Digital, Longitudinal Tracking of Wearable Metrics and Patient-Reported Outcomes
American Society of Haematology Exposition
(2023) — Oral Presentation
ASTHMA
Areas of interest / National A&E activity & asthma attack prevention
Biomarkers /
Wearables, PROs, Disease Symptoms
Published in /
TBC
Wearable Technology To Support Asthma Patients And Improve NHS Capacity
Collaboration with Modality Partnership
(2023 )
AMYLOIDOSIS
Areas of interest /
Prognostic markers & overall survival
Biomarkers /
Pathology, Activity (6MWT)
Published in /
HemaSphere, European Haematology Association
Disparate Prediction of Outcomes in A Uniformly Treated Cohort of Patients with AL Amyloidosis Stratified by Mayo 2012 & European Cardiac Staging Systems
European Haematology Association
(2023)
WALDENSTROM’S MACROGLOB-ULINAEMIA (WM)
Areas of interest /
Treatment adherence & impact monitoring
Biomarkers /
Activity, Sleep, PROs
Published in /
TBC
A Real-World digital monitoring Study exploring the Day-to-Day Experience of Patient activity, Sleep, and outcome measures in WM
University College London Hospital NHS Trust
(2023 )
SICKLE CELL DISEASE
Areas of interest /
Real-world experiences & unmet needs
Biomarkers /
Social Media Keywords
Published in /
Blood Journal, American Society of Haematology
Understanding the Experiences of Patients with Sickle Cell Disease and Their Caregivers By Social Media Listening in the UK
Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)
SICKLE CELL DISEASE
Areas of interest /
Outcomes research & novel therapeutic impacts
Biomarkers /
EQ-5D-5L, Activity, Sleep
Published in /
Blood Journal, American Society of Haematology
Real-World Outcomes and Digitally Monitored Quality of Life in Voxelotor-Treated Patients with Sickle Cell Disease
Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)
SICKLE CELL DISEASE
Areas of interest /
Outcomes research & novel therapeutic impacts
Biomarkers /
EQ-5D-5L, Side Effects, Disease Symptoms
Published in /
HemaSphere, European Haematology Association
Real-World Outcomes and Digitally Monitored Quality of Life in Crizanlizumab-Treated Patients With Sickle Cell Disease
European Haematology Association
(2023)
SICKLE CELL DISEASE
Areas of interest /
Impact of real-time sleep metrics on QoL
Biomarkers /
EQ-5D-5L, Sleep
Published in /
British Journal of Haematology
Using Wearables and Web-Based Self-Reporting to Explore Deep Sleep and PRO correlations in Sickle Cell Disease
63rd Annual Meeting, British Society of Haematology
(2023)
SICKLE CELL DISEASE
Areas of interest /
Live disease baseline characterisation & tracking
Biomarkers /
EQ-5D-5L, Pain, Sleep, Activity, Heart Rate
Published in /
HemaSphere, European Haematology Association
Real-World PROs and Wearable Metric Correlations: Remote Daily Monitoring for Exploration of Quality of Life in Sickle Cell Disease
17th Annual Sickle Cell and Thalassaemia Conference
(2022)
SICKLE CELL DISEASE
Areas of interest /
Approaches to QoL assessment & their impact
Biomarkers /
EQ-5D-5L
Published in /
HemaSphere, European Haematology Association
Live Outcomes and Biometric Monitoring: Potential Implications For Patient Quality of Life in Sickle Cell Disease
17th Annual Sickle Cell and Thalassaemia Conference
(2022)
SICKLE CELL DISEASE
Areas of interest /
Real-world vaccination impacts
Biomarkers /
Sleep, Heart Rate, Activity, SpO2, ECG, PROs
Published in /
HemaSphere, European Haematology Association
Real-Time Vaccination Impacts in Sickle Cell Disease: A Real-World Patient Case Study for Influenza and Covid-19 Vaccination
Annual Academy of Sickle Cell and Thalassaemia Conference, ASCAT
(2022)