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Unlocking Insights: Wearables & Data for Sickle Cell Crisis Prediction
Translating Real-World Wearables and Digital Self-Reporting Data to Novel Research Insights | Vaso-Occlusive Crisis Predictions and Treatment Pathway Insights in Sickle Cell Disease
News & Press
Advancements in Real-World Healthcare-Focused AI | A Patient Use Case in Vaso-Occlusive Crisis Prediction
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Top 80 Most Influential People in SCD
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Translating Real-World Wearables and Digital Self-Reporting Data to Novel Research Insights | Vaso-Occlusive Crisis Predictions and Treatment Pathway Insights in Sickle Cell Disease
&...
Studies and resources
SICKLE CELL DISEASE
Areas of interest /
AI-driven crisis prediction
Biomarkers /
Sleep, Activity, Heart Rate, Pain, Fatigue, EQ-5D
Published in /
Blood Journal, American Society of Haematology
Predicting Vaso-Occlusive Crises in Sickle Cell Disease through Digital, Longitudinal Tracking of Wearable Metrics and Patient-Reported Outcomes
American Society of Haematology Exposition
(2023) — Oral Presentation
ASTHMA
Areas of interest / National A&E activity & asthma attack prevention
Biomarkers /
Wearables, PROs, Disease Symptoms
Published in /
TBC
Wearable Technology To Support Asthma Patients And Improve NHS Capacity
Collaboration with Modality Partnership
(2023 )
AMYLOIDOSIS
Areas of interest /
Prognostic markers & overall survival
Biomarkers /
Pathology, Activity (6MWT)
Published in /
HemaSphere, European Haematology Association
Disparate Prediction of Outcomes in A Uniformly Treated Cohort of Patients with AL Amyloidosis Stratified by Mayo 2012 & European Cardiac Staging Systems
European Haematology Association
(2023)
WALDENSTROM’S MACROGLOB-ULINAEMIA (WM)
Areas of interest /
Treatment adherence & impact monitoring
Biomarkers /
Activity, Sleep, PROs
Published in /
TBC
A Real-World digital monitoring Study exploring the Day-to-Day Experience of Patient activity, Sleep, and outcome measures in WM
University College London Hospital NHS Trust
(2023 )
SICKLE CELL DISEASE
Areas of interest /
Real-world experiences & unmet needs
Biomarkers /
Social Media Keywords
Published in /
Blood Journal, American Society of Haematology
Understanding the Experiences of Patients with Sickle Cell Disease and Their Caregivers By Social Media Listening in the UK
Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)
SICKLE CELL DISEASE
Areas of interest /
Outcomes research & novel therapeutic impacts
Biomarkers /
EQ-5D-5L, Activity, Sleep
Published in /
Blood Journal, American Society of Haematology
Real-World Outcomes and Digitally Monitored Quality of Life in Voxelotor-Treated Patients with Sickle Cell Disease
Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)
SICKLE CELL DISEASE
Areas of interest /
Outcomes research & novel therapeutic impacts
Biomarkers /
EQ-5D-5L, Side Effects, Disease Symptoms
Published in /
HemaSphere, European Haematology Association
Real-World Outcomes and Digitally Monitored Quality of Life in Crizanlizumab-Treated Patients With Sickle Cell Disease
European Haematology Association
(2023)
SICKLE CELL DISEASE
Areas of interest /
Impact of real-time sleep metrics on QoL
Biomarkers /
EQ-5D-5L, Sleep
Published in /
British Journal of Haematology
Using Wearables and Web-Based Self-Reporting to Explore Deep Sleep and PRO correlations in Sickle Cell Disease
63rd Annual Meeting, British Society of Haematology
(2023)
SICKLE CELL DISEASE
Areas of interest /
Live disease baseline characterisation & tracking
Biomarkers /
EQ-5D-5L, Pain, Sleep, Activity, Heart Rate
Published in /
HemaSphere, European Haematology Association
Real-World PROs and Wearable Metric Correlations: Remote Daily Monitoring for Exploration of Quality of Life in Sickle Cell Disease
17th Annual Sickle Cell and Thalassaemia Conference
(2022)
SICKLE CELL DISEASE
Areas of interest /
Approaches to QoL assessment & their impact
Biomarkers /
EQ-5D-5L
Published in /
HemaSphere, European Haematology Association
Live Outcomes and Biometric Monitoring: Potential Implications For Patient Quality of Life in Sickle Cell Disease
17th Annual Sickle Cell and Thalassaemia Conference
(2022)
SICKLE CELL DISEASE
Areas of interest /
Real-world vaccination impacts
Biomarkers /
Sleep, Heart Rate, Activity, SpO2, ECG, PROs
Published in /
HemaSphere, European Haematology Association
Real-Time Vaccination Impacts in Sickle Cell Disease: A Real-World Patient Case Study for Influenza and Covid-19 Vaccination
Annual Academy of Sickle Cell and Thalassaemia Conference, ASCAT
(2022)