Featured content.

Unlocking Insights: Wearables & Data for Sickle Cell Crisis Prediction

Translating Real-World Wearables and Digital Self-Reporting Data to Novel Research Insights | Vaso-Occlusive Crisis Predictions and Treatment Pathway Insights in Sickle Cell Disease

Studies and resources

SICKLE CELL DISEASE

Areas of interest /
AI-driven crisis prediction

Biomarkers /
Sleep, Activity, Heart Rate, Pain, Fatigue, EQ-5D

Published in /
Blood Journal, American Society of Haematology

Predicting Vaso-Occlusive Crises in Sickle Cell Disease through Digital, Longitudinal Tracking of Wearable Metrics and Patient-Reported Outcomes

American Society of Haematology Exposition
(2023) — Oral Presentation

ASTHMA

Areas of interest / National A&E activity & asthma attack prevention

Biomarkers /
Wearables, PROs, Disease Symptoms

Published in /
TBC

Wearable Technology To Support Asthma Patients And Improve NHS Capacity

Collaboration with Modality Partnership
(2023 )

AMYLOIDOSIS

Areas of interest /
Prognostic markers & overall survival

Biomarkers /
Pathology, Activity (6MWT)

Published in /
HemaSphere, European Haematology Association

Disparate Prediction of Outcomes in A Uniformly Treated Cohort of Patients with AL Amyloidosis Stratified by Mayo 2012 & European Cardiac Staging Systems

European Haematology Association
(2023)

WALDENSTROM’S MACROGLOB-ULINAEMIA (WM)

Areas of interest /
Treatment adherence & impact monitoring

Biomarkers /
Activity, Sleep, PROs

Published in /
TBC

A Real-World digital monitoring Study exploring the Day-to-Day Experience of Patient activity, Sleep, and outcome measures in WM

University College London Hospital NHS Trust
(2023 )

SICKLE CELL DISEASE

Areas of interest /
Real-world experiences & unmet needs

Biomarkers /
Social Media Keywords

Published in /
Blood Journal, American Society of Haematology

Understanding the Experiences of Patients with Sickle Cell Disease and Their Caregivers By Social Media Listening in the UK

Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)

SICKLE CELL DISEASE

Areas of interest /
Outcomes research & novel therapeutic impacts

Biomarkers /
EQ-5D-5L, Activity, Sleep

Published in /
Blood Journal, American Society of Haematology

Real-World Outcomes and Digitally Monitored Quality of Life in Voxelotor-Treated Patients with Sickle Cell Disease

Collaboration with Pfizer Ltd., American Society of Haematology Exposition
(2023)

SICKLE CELL DISEASE

Areas of interest /
Outcomes research & novel therapeutic impacts

Biomarkers /
EQ-5D-5L, Side Effects, Disease Symptoms

Published in /
HemaSphere, European Haematology Association

Real-World Outcomes and Digitally Monitored Quality of Life in Crizanlizumab-Treated Patients With Sickle Cell Disease

European Haematology Association
(2023)

SICKLE CELL DISEASE

Areas of interest /
Impact of real-time sleep metrics on QoL

Biomarkers /
EQ-5D-5L, Sleep

Published in /
British Journal of Haematology

Using Wearables and Web-Based Self-Reporting to Explore Deep Sleep and PRO correlations in Sickle Cell Disease

63rd Annual Meeting, British Society of Haematology
(2023)

SICKLE CELL DISEASE

Areas of interest /
Live disease baseline characterisation & tracking

Biomarkers /
EQ-5D-5L, Pain, Sleep, Activity, Heart Rate

Published in /
HemaSphere, European Haematology Association

Real-World PROs and Wearable Metric Correlations: Remote Daily Monitoring for Exploration of Quality of Life in Sickle Cell Disease

17th Annual Sickle Cell and Thalassaemia Conference
(2022)

SICKLE CELL DISEASE

Areas of interest /
Approaches to QoL assessment & their impact

Biomarkers /
EQ-5D-5L

Published in /
HemaSphere, European Haematology Association

Live Outcomes and Biometric Monitoring: Potential Implications For Patient Quality of Life in Sickle Cell Disease

17th Annual Sickle Cell and Thalassaemia Conference
(2022)

SICKLE CELL DISEASE

Areas of interest /
Real-world vaccination impacts

Biomarkers /
Sleep, Heart Rate, Activity, SpO2, ECG, PROs

Published in /
HemaSphere, European Haematology Association

Real-Time Vaccination Impacts in Sickle Cell Disease: A Real-World Patient Case Study for Influenza and Covid-19 Vaccination

Annual Academy of Sickle Cell and Thalassaemia Conference, ASCAT
(2022)